What is Sunshine Support and what is your role?
I am the founding Director of Sunshine Support, established in 2017 following a personal journey. There was a significant gap for parents and carers, either resources were laden with local authority agendas or exorbitantly expensive. Despite facing trauma through Tribunal hearings for my own daughter and financial setbacks as a result, I was fortunate to overcome obstacles for my daughter and establish a platform to bridge this gap. Initially reluctant to engage with the system, I now believe in the power of coproduction. Sunshine Support now assists both parents and carers, as well as professionals.
Tell us about the importance of Parent Carer Support and Advocacy?
Parents and carers, as evidenced by research, require information, community, and support for their well-being. Sunshine Support provides these essential elements by offering truth, legal guidance, and impartial information. Parents and carers need the strength to advocate for their children, knowing they have a supportive community that understands their challenges and offers a platform for sharing experiences and receiving support. This allows them to channel their energy effectively and make informed decisions.
Well-being is paramount; my personal journey, I had a successful court case followed by a stroke in my late thirties, this highlighted the importance of managing energy levels and focusing on pertinent issues or health issues with arise. Some parents, particularly those who are neurodivergent, feel a strong sense of injustice. Having a supportive community that understands and validates their experiences is crucial. While it’s admirable that some parents are fervently advocating for their children, it’s essential to discern when and how to utilise that energy effectively. Sunshine Support sometimes acts as a voice for parents in such situations, especially when faced with negligent reports or accusations like FII.
Lack of understanding of the neurodivergent community exacerbates issues like FII, which disproportionately affects women, especially those with PDA. It’s often perceived as personal and vindictive, adding to the challenges faced by families.
What are your views on the proposed changes to better support SEND students and their families?
There have been so many proposed changes, unfortunately, we’ve seen minimal progress both locally and nationally. There is a pressing need to create more inclusive opportunities within mainstream education. However, these proposals often overlook consultations and parent feedback. For instance, in Derby, a city known for its engineering prowess, there’s a significant population of engineers who are also parents of autistic children. This demographic faces a substantial gap in available support services. My own daughter had to travel four hours for suitable support. There’s a general frustration with the bureaucratic processes, including endless questionnaires and consultations, without tangible outcomes.
At Spaghetti Bridge, we endeavor to make pedagogy practical, real-life, and experiential by collaborating with industry experts and engaging children in project-based learning. How do you think we could influence mainstream adoption of this approach to benefit a larger audience?
The education sector lags behind other industries in adapting to evolving needs. While sectors like retail have adapted to changing consumer habits over the past two decades, education remains largely stagnant. Traditional classroom settings often stifle creativity and engagement. We need to embrace more dynamic approaches like outdoor and forest schools, where learning happens naturally. The current curriculum often fails to engage children, leading to disinterest and underperformance. By focusing on personalised and immersive learning experiences, we can unlock the potential of every child and foster a more inclusive educational environment.
Sunshine Support are on a mission to gain equity within education, health and care for children and young people with special educational needs – and their families – through accessible education, support and advocacy for parents, carers and professionals. To learn more, please visit their website: www.sunshine-support.org